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Good practice data linkage (GPD): A translation of the german version

  • Stefanie March
  • , Silke Andrich
  • , Johannes Drepper
  • , Dirk Horenkamp-Sonntag
  • , Andrea Icks
  • , Peter Ihle
  • , Joachim Kieschke
  • , Bianca Kollhorst
  • , Birga Maier
  • , Ingo Meyer
  • , Gabriele Müller
  • , Christoph Ohlmeier
  • , Dirk Peschke
  • , Adrian Richter
  • , Marie Luise Rosenbusch
  • , Nadine Scholten
  • , Mandy Schulz
  • , Christoph Stallmann
  • , Enno Swart
  • , Stefanie Wobbe-Ribinski
  • Antke Wolter, Jan Zeidler, Falk Hoffmann*
*Corresponding author for this work

Research output: Contribution to journalArticleResearchpeer review

Abstract

The data linkage of different data sources for research purposes is being increasingly used in recent years. However, generally accepted methodological guidance is missing. The aim of this article is to provide methodological guidelines and recommendations for research projects that have been consented to across different German research societies. Another aim is to endow readers with a checklist for the critical appraisal of research proposals and articles. This Good Practice Data Linkage (GPD) was already published in German in 2019, but the aspects mentioned can easily be transferred to an international context, especially for other European Union (EU) member states. Therefore, it is now also published in English. Since 2016, an expert panel of members of different German scientific societies have worked together and developed seven guidelines with a total of 27 practical recommendations. These recommendations include (1) the research objectives, research questions, data sources, and resources; (2) the data infrastructure and data flow; (3) data protection; (4) ethics; (5) the key variables and linkage methods; (6) data validation/quality assurance; and (7) the long-term use of data for questions still to be determined. The authors provide a rationale for each recommendation. Future revisions will include new developments in science and updates of data privacy regulations.

Original languageEnglish
Article number7852
Pages (from-to)1-20
Number of pages20
JournalInternational Journal of Environmental Research and Public Health
Volume17
Issue number21
E-pub ahead of print27 Oct 2020
DOIs
Publication statusPublished - 1 Nov 2020

UN Sustainable Development Goals (SDGs)

This output contributes to the following UN Sustainable Development Goals (SDGs)

  1. SDG 3 - Good Health and Well-being
    SDG 3 Good Health and Well-being

Keywords

  • Epidemiology
  • Guidelines
  • Health services research
  • Personal data
  • Record linkage
  • Standard

ASJC Scopus subject areas

  • Public Health, Environmental and Occupational Health
  • Health, Toxicology and Mutagenesis

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